Resources and Links

Research:

Cooperative research centers (3) awarded funding in 2003 from the National Institutes of Health for study of the muscular dystrophies:

University of Pittsburgh Medical Center, Joseph C. Gloriso, Ph.D.
University of Washington at Seattle, Jeffrey S. Chamberlain, Ph.D.
The University of Rochester, New York, Richard T. Moxley, II, M.D.

Other prominent research centers:

Penn State
Research Center for Genetic Medicine at Children’s National Medical Center at George Washington University
University of Iowa, Kevin P. Campbell, Ph.D.
University of Utah Muscular Dystrophy Center

Patient/Family Resources:

Charcot-Marie-Tooth Association

FacioScapuloHumeralSociety

Families of Spinal Muscle Atrophy

Harvard Neuromuscular Disease Project – Research from this project will result in a better understanding of the pathology of specific neuromuscular diseases and in new approaches to the treatment of the muscular dystrophies and myopathies.

Genetic Testing for Neurological Conditions – The University of Washington at  Seattle web site with information on genetic testing for myotonic dystrophy, spinobellar ataxia and fascioscapulohumeral muscular dystrophy

Minnesota Department of Health – Resources for Early Intervention

Muscular Dystrophy Association

National Institutes of Health - Road Map 

Parents Project– A resource for families and patients with Duchenne muscular dystrophy