An excellent website is the ALS Digest. This open forum digest includes feedback from people with ALS/MND, their caregivers, doctors, researchers, and others with information pertinent to ALS/MND. To subscribe, to unsubscribe, and/or to contribute notes, etc. to the ALS Digest, please go to: http://www.geocities.com/HotSprings/Spa/9932/alsdige.html
GENERAL ALS/MND INFORMATION AND LINKS TO OTHER INTERNET SITES
National Institute of Neurological Disorders http://www.ninds.nih.gov/
Fax: 301-496-0017
World Federation of Neurology ALS/MND site at http://www.wfnals.org
Neuromuscular Disease Centre http://www.neuro.wustl.edu/neuromuscular/
MEDICAL SEARCH ENGINES & INFORMATION SITES
How to Perform Medical Searches
http://www.chu-rouen.fr/documed/pmeeng.html
Conducting Medline Searches http://www.ncbi.nlm.nih.gov/PubMed/
Medical & Scientific Searches http://www.softseek.com/Education_and_Science/Science_and_Engineering/index.htm
DocGuide information for and by doctors http://www.docguide.com/
To contact Medical Experts http://www.newswise.com/query-sm.htm
Health On The Net http://www.hon.ch/
Healthlink USA http://www.healthlinkusa.com
Healthseek http://www.healthseek.com/
NORD (Rare Diseases) homepage http://www.pcnet.com/~orphan/
Internet Drug Index http://www.rxlist.com/
Participating in Clinical Trials http://www.centerwatch.com/BACKGRND.HTM
Neurology in Spanish http://www.rediris.es or send e-mail to:
listserv@listserv.rediris.es Ignore the SUBJECT line. In first message line write SUBSCRIBE NEUROLOGIA+your name.
World Federation of Neurology; Amyotrophic Lateral Sclerosis
http://www.wfnals.org
Baylor College of Medicine, Department of Neurology MDA/ALS Clinic
http://www.bcm.edu/neurology/research/als/als1.html
Washington University Medical School Neuromuscular Disease Center, St. Louis, MO
http://www.neuro.wustl.edu/neuromuscular/
NEUROSCIENCES ON THE INTERNET
UK http://www.genetics.gla.ac.uk/neil/index.html
American Academy of Neurology http://www.aan.com/
The Birmingham Neuroscience WWW pageshttp://medweb.bham.ac.uk/clin_neuro.html
Communication Independence for the Neurologically Impaired, Inc. (CINI)
http://www.cini.org
Paul Vineberg's homepage http://www.users.bigpond.com/paulfran/default.htm
Steve Killeen's website http://www.iol.ie/~killeen/stevemnd/stevehom.htm
Leroy Kramer's page http://home.pacbell.net/ranger-1/
Jon Phillips' webpage http://members.aol.com/jphill1492/page/index.htm